The best way to sum up last night? Nightmarish. Literally, for both Meredith and me. Her pain got worse and worse as the late evening wore on, until it was actually difficult for her to breathe and she was crying. They had removed her first IV due to the irritation and swelling, so they had to place a second IV. They couldn’t get it in and must have dug around under her skin for 30 minutes – with her screaming hysterically the whole time – until they finally got it. Her pain was so bad she couldn’t get out of bed to use the bathroom and we had to use a bedpan. It was agonizing for me to see her like that. When the doctor finally came in (at 11:20 pm or so) he said he would give her morphine (Lars and I had wanted to avoid such a strong drug but at that point I was doing my best Shirley McLain impression – “Give my daughter the drugs!!”) but at the last minute as she fell asleep, he suggested seeing if she could get through the night without it and I agreed. She slept fitfully, tossing and turning and calling out. I was so uptight that I didn’t get to sleep until almost 1:00. She was still in pain this morning, although not as much since the IV steroids were back at work, but I was ready to have a discussion with the doc at morning rounds about pain management. He didn’t show up, and didn’t show up and finally at 1:00, we had the nurses page him for an OK for Motrin – regular over the counter strength, which seemed to help. Put her at a “5” on the pain scale, according to Meri. The doctor never did show up today, at least not before I left the hospital at 4:00.I am worried and frustrated. Part of this is exhaustion I’m sure, but it feels as though we are being passed back and forth with no one doctor really managing her treatment. Maybe I just don’t see what goes on behind the scenes, but I find myself wishing for some kind of case worker or something. I know so many others have it worse, but I have to tell you, last night set some kind of new bar for me. Her face, even when she was sleeping, was just grimacing in pain. I have very little expectation that she’ll be released tomorrow. And somewhere in the back of my brain I’m starting to wonder about what kind of medical expenses we are racking up given that today was now day 5 in hospital. But in the words of a famous survivor, I’ll think about that tomorrow.We did get a wonderful surprise visit today from our friends Kris, John and Corin. It was great to see them, and they brought some wonderful diversions for Meredith today. We continue to appreciate your calls and messages and beg forgiveness for not responding individually – there are so many! we are truly loved.. – and hope you understand.I’ll post again with another update later today or tomorrow when we see the M-F doctor.