That’s just not something you ever expect your 7 year old to do. But she was today, by the time we got to the hospital. It breaks my heart that she even knows what morphine is, much less that she was literally crying for it. They did give her morphine shortly after our arrival and then a second dose before her ultrasound. The US lasted for about 75 minutes. They checked every single organ in her body. I loved that Meri perked up enough to say “I want to see my heart!” and then she got to see it….all the ventricles pumping away. 🙂 The US tech did the exam and then the radiologist actually came in and spent about 20 minutes looking at her as well. The good news is that there was no obstruction in her bowel and no intussusception. The bad news? There was no obstruction in her bowel and no intussusception. Lars and I want something we can FIX!
She is going to have an upper GI scope done, possibly tomorrow. RIght now they want to keep her IV meds going and give her “bowel rest” which means no food. She doesn’t want any right now, but she will, soon enough.
This is really straining me. I am worried, tired, frustrated, impatient, distracted and feeling guilty (because she isn’t dying, and so many others have it worse). Jack is holding up OK, but he is starting to show some strain as well, acting out when we are all together. I’m worried about Meredith too – she so desperately wants her normal life back. I can’t believe this has only been going on for 3 weeks. It feels like 6 months.
If you’d like to visit in the next 1-2 days, we are now at Eggleston, down by the CDC/Emory. I suggest giving us a call first just to be sure she isn’t doped up on morphine (which leaves her either sleeping or totally out of it) and that she’s not having any procedures done. But, as always, she loves the visitors. Thank you all!