She followed her normal pattern. The rash, then the join pain, both starting at her feet/ankles and working their way up her body. Her blood count on Tuesday was quite low, but her proteinuria was better on Wednesday. But, Wednesday night about midnight or so, she woke up with belly pain. By three am it was severe and she was vomiting. Lars called me (I was in El Paso Texas on business) and we agreed to bring her back here where she was admitted again.
Thank God Debbie Olstad, my wonderful mother-in-law is here with us so Lars could let Jack sleep. Poor little guy woke up and wandered around the house looking for someone after fnding mom & dad’s room and Meri’s room empty. He told me that just as he was starting to get scared Grandma found him, and then he was OK. Of course, she had no car (mine was at the airport and Lars’ was at the hospital) so huge thanks to our friends Dee and Kate for playing pre-school bus driver for Jack yesterday.
I canceled some of my meetings and managed to scrounge some flights back to Atlanta on Thursday. There are only 2 flights out of El Paso to Atlanta on Delta, so I had to fly to Dallas on American Airlines, then find the Delta gates and catch that flight. When I got to the Delta counter, I checked in with them since I didn’t have a boarding pass. The agent pulled up my reservation and it showed that it was confirmed – for FRIDAY! I just lost it and started crying right there, thinking I was stranded in Dallas for the night. She was an angel and just put me on the flight without any problem at all. I went straight to the hospital and got here about 11:30 last night). Did I mention that I also have a sinus infection which is always fun when flying. I still hear everything like I”m in a tunnel and the pressure in my head is intense.
Now we’re doing more tests. She’s already had an x-ray and ultrasound. They are going to do another ultrasound and possibly another CT scan. She’s baffling her whole team of docs – regular pediatrics, hematology, rheumatology, nephrology and GI. A true mystery girl… I have no idea how long we’ll be here or what the plan is now. She’s feeling much better, but that means boredom will set in soon. As always, she’d love a call or a visit. (Call before you come just to make sure we are still here since Egleston is a bit more out of the way than Scottish Rite). Room 347…..which I have to say is a GREAT Room. We’re in the new AFLAC Cancer / Hematology center and it is really nice. Large room, hardwood floors, very nice.
As frustrated as we are with all of this, we continue to receive great care from the staff here. They are universally caring, compassionate, dedicated people and we are so lucky to live so close to a world class facility.