It’s been a while since we’ve updated on Meredith. She had a doctor’s appointment on Tuesday and her labs were all the same or slightly better. Yay! She had new purpura on Monday / Tuesday, so she’s still having flare ups, but her current med cocktail seems to be holding it pretty well.
She still has her PICC line in and because of that can’t go swimming which is torture for a seven year old the first few weeks of summer. But, she’s holding it together pretty well. We’ve started transitioning back to oral steriods and hope to get the PICC out in the next 2 weeks.